The SMA News Today Podcast: Danielle Sheypuk

Home Forums SMA​ ​and​ ​Dating/Relationships The SMA News Today Podcast: Danielle Sheypuk

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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

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    This topic has 1 reply, 1 voice, and was last updated 10 months ago by Kevin Schaefer.

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      • October 28, 2018 at 8:01 am #14888
        Kevin Schaefer
        Keymaster

        Here’s another episode of the SMA News Today Podcast I recorded earlier this year: https://smanewstoday.com/2018/01/24/sma-news-today-podcast-episode-4-dr-danielle-sheypuk/?amp.

        Danielle is a renowned psychologist with SMA, whose focus is on dating and disability. I hope you all will give this episode a listen, and let me know your thoughts in the comments.

         

      • February 14, 2019 at 12:17 pm #17215
        Kevin Schaefer
        Keymaster

        Hey everyone, happy Valentine’s Day!

        I did this podcast a while ago, but I wanted to repost it today. Dr. Danielle Sheypuk is a renowned expert on dating and disability, and she shares some great perspectives here. Hope you enjoy it!

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    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

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