A father’s perspective: Our journey to finding a treatment
When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our other 3 children, my wife, Annie, and I thought we had the “chillest” baby in the world. We joked that she was saving up all her energy for when she entered this world kicking and screaming. Quinn was born in August 2018, and she was the most beautiful little girl. Over the first few months, nothing seemed out of the ordinary. In fact, she appeared healthy and had strong upper body strength. But by the time Quinn’s 9-month check-up came around in June, her physical condition started to change.
[caption id="attachment_16400" align="alignnone" width="579"] Photo Contributed by Tyler Dukes[/caption]
In the latest episode of the SMA News Today Podcast, I chat with Tyler Dukes from Carrollton, Texas. Tyler is a Development Operations Analyst, and has SMA type 2.
We talk about everything from Tyler growing up in school, his whirlwind of a journey in college, and the obstacles he’s faced in regards to acquiring caregivers. We also discuss our experiences with Spinraza, and how we met at the 2018 Cure SMA conference.
This episode hits on a lot of great information and advice for other adults with SMA, so be sure to give it a listen. All episodes of the podcast are available on SoundCloud, iTunes, Spotify, and here on our website at http://www.smanewstoday.com. Let me know your thoughts in the comments.
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SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.