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Time Is Motor Neurons

A father’s perspective: Our journey to finding a treatment

When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our other 3 children, my wife, Annie, and I thought we had the “chillest” baby in the world. We joked that she was saving up all her energy for when she entered this world kicking and screaming. Quinn was born in August 2018, and she was the most beautiful little girl. Over the first few months, nothing seemed out of the ordinary. In fact, she appeared healthy and had strong upper body strength. But by the time Quinn’s 9-month check-up came around in June, her physical condition started to change.


This topic has 0 replies, 1 voice, and was last updated 1 year, 4 months ago by Kevin Schaefer.

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      Kevin Schaefer
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      [caption id="attachment_16400" align="alignnone" width="579"] Photo Contributed by Tyler Dukes[/caption]

       

      In the latest episode of the SMA News Today Podcast, I chat with Tyler Dukes from Carrollton, Texas. Tyler is a Development Operations Analyst, and has SMA type 2.

      We talk about everything from Tyler growing up in school, his whirlwind of a journey in college, and the obstacles he’s faced in regards to acquiring caregivers. We also discuss our experiences with Spinraza, and how we met at the 2018 Cure SMA conference.

      This episode hits on a lot of great information and advice for other adults with SMA, so be sure to give it a listen. All episodes of the podcast are available on SoundCloud, iTunes, Spotify, and here on our website at http://www.smanewstoday.com. Let me know your thoughts in the comments.

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