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Spinraza Setbacks and Looking at Other Therapies
In his column this week, Ryan wrote about why he’s decided to hold off on Spinraza for now, and is instead looking into other treatments. You can read it here: https://smanewstoday.com/2018/10/11/sma-research-disease-modifying-therapies-spinraza-avxs-101/?amp.
I know others in similar situations. I’ve been fortunate with my Spinraza treatments, but I know many other adults with SMA who are still struggling to acquire this drug.
What have your experiences been?
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