Sticking with Evrysdi
Yesterday I met with my neurologist. Afterwards I also had a physical therapy assessment. That portion was a little tricky to do virtually. However, we decided there hasn’t been a significant change. Because of that along with finding a 1/2 dose of Imodium daily is alleviating my side effects from Evrysdi we decided to stay the course. We’ll revisit the issue in 6 months. Unfortunately it’ll have to be in person because he wants current pft’s. I’m curious on my numbers too, so it might be worth the trip. Except for the fact it’ll be winter. At the end of the day I’m good with the decision to continue Evrysdi. It was interesting, I was one of their first patients with stomach issues from Evrysdi, but I haven’t been the last. Because of that they were intrigued how I’m dealing with the issue. I shared what I’ve been doing, and shared some of the tips you guys have shared as well. Hopefully it’ll bring some relief to those struggling with similar issues.