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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 4 replies, 3 voices, and was last updated 1 year, 10 months ago by Kevin Schaefer.

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    • #14191
      Kevin Schaefer
      Keymaster

      I used to get migraines all the time, but now I get them much less frequently. Still, with the recent storm and dramatic shifts in the weather here in North Carolina, I’m more prone to headaches and fatigue.

      When I experience headaches and fatigue, I have a pretty standard strategy for overcoming both. They tend to hit me in the late afternoon, and as soon as I feel a headache coming, I take an Advil, turn off all the lights in my room and either lean back in my chair or lie down. Sometimes it takes longer to get rid of, but generally an Advil and a good nap will take care of things. If I have plans when I get like this, I cancel them. Whether it’s fatigue or a migraine, I know I won’t have enough energy to go out.

      Do you all experience migraines or fatigue often? Do you have a similar strategy or something different which you’d recommend?

    • #14208
      Ryan Berhar
      Keymaster

      I’ve never had a migraine, and get headaches rarely. So I guess I’m fortunate in that regard lol.

      • #14214
        Kevin Schaefer
        Keymaster

        Yeah that is good you haven’t had to deal with migraines. They’re not fun haha.

    • #14253
      Adnan Hafizovic
      Participant

      I also haven t problem wit migraine,but we must have take time out in afternoon,little nap and resting

      • #14259
        Kevin Schaefer
        Keymaster

        For sure. It can be tough when it interrupts your schedule, but ultimately you have to prioritize your well-being and rest.

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