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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.


  • This topic has 4 replies, 3 voices, and was last updated 1 year, 3 months ago by Kevin Schaefer.

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      • #14191
        Kevin Schaefer
        Keymaster

        I used to get migraines all the time, but now I get them much less frequently. Still, with the recent storm and dramatic shifts in the weather here in North Carolina, I’m more prone to headaches and fatigue.

        When I experience headaches and fatigue, I have a pretty standard strategy for overcoming both. They tend to hit me in the late afternoon, and as soon as I feel a headache coming, I take an Advil, turn off all the lights in my room and either lean back in my chair or lie down. Sometimes it takes longer to get rid of, but generally an Advil and a good nap will take care of things. If I have plans when I get like this, I cancel them. Whether it’s fatigue or a migraine, I know I won’t have enough energy to go out.

        Do you all experience migraines or fatigue often? Do you have a similar strategy or something different which you’d recommend?

      • #14208
        Ryan Berhar
        Keymaster

        I’ve never had a migraine, and get headaches rarely. So I guess I’m fortunate in that regard lol.

        • #14214
          Kevin Schaefer
          Keymaster

          Yeah that is good you haven’t had to deal with migraines. They’re not fun haha.

      • #14253
        Adnan Hafizovic
        Participant

        I also haven t problem wit migraine,but we must have take time out in afternoon,little nap and resting

        • #14259
          Kevin Schaefer
          Keymaster

          For sure. It can be tough when it interrupts your schedule, but ultimately you have to prioritize your well-being and rest.

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