• Sponsored Post

    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 3 replies, has 4 voices, and was last updated by  Halsey Blocher 3 months, 1 week ago.

    • Author
      Posts
    • #18638
       Kevin Schaefer 
      Keymaster

      Hey everyone, here’s Michael Casten’s latest column: https://smanewstoday.com/2019/05/01/when-times-become-harder-gathering-support-is-essential/.

      This is a really sobering piece, but it speaks to the importance of having a powerful support system. And I hope for the best for Michael’s family.

      What do you and your family do in times like this? Who do you rely on for support and care?

    • #18675
       Ryan Berhar 
      Keymaster

      Dang. Thoughts and prayers to the family.

    • #18684
       DeAnn R 
      Keymaster

      As Ryan said, my thoughts and prayers are with them. Their situation kind of reminds me of when I was younger although our situation much less severe. My Mom had injured her back and couldn’t do my cares. I was a little bit older than Ella, and wasn’t as comfortable having Dad do my personal cares, so that was the first time we had outside help come in. I think initially it was weird for all of us having a stranger coming into the home, but in the long run it really helped Mom recover. It also gave me more conference as I got older that I could direct caregivers with my cares as I headed to college. Of course every situation is unique, but I wouldn’t hesitate to recommend to Michael to enlist outside help if it gets to be overwhelming for them.

    • #18757
       Halsey Blocher 
      Participant

      Oh gracious! Prayers for the best possible outcome and pain relief! I agree with DeAnn. It may be wise to look into hiring some aids to help Ella so that her care is not dependent on one person. It can too much for one person to take on the entirety of their child’s care, and the exhaustion can impact you’re ability to care for that person. Having additional caregivers isn’t always fun, but everyone needs a break.

    You must be logged in to reply to this topic.

  • Videos

  • ©2019 KLEO Template a premium and multipurpose theme from Seventh Queen

    CONTACT US

    We're not around right now. But you can send us an email and we'll get back to you, asap.

    Sending
    or

    Log in with your credentials

    or    

    Forgot your details?

    or

    Create Account

    Copyright © 2017-2019 All rights reserved.