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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 5 replies, 2 voices, and was last updated 1 year, 6 months ago by DeAnn R.

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    • #16997
      Kevin Schaefer
      Keymaster

      Per DeAnn’s recommendation, I bought an Amazon Echo Fire Cube for myself, and it arrived yesterday. It’s great! With it, it essentially makes my tv a smart tv. Currently I’ve got it set up to play Netflix, Amazon Prime, Hulu and DC Universe. It’s incredibly easy to use, and relatively inexpensive, especially considering the things it can do. Watch DeAnn’s video if you haven’t already.

      Is anyone else using this device? Do you have any questions about it?

    • #17056
      DeAnn R
      Keymaster

      What’s your favorite feature so far?  Anything you’re not fond of with it?

      • #17070
        Kevin Schaefer
        Keymaster

        Amazon Prime and Netflix are working great. The only app I’m having trouble with is the DC Universe one, but I think it’s the app itself. It just recently became available on Amazon devices, so I think they’re still working out the kinks. But other than that it’s great!

        • #17091
          DeAnn R
          Keymaster

          Some apps do work better than others.  If one locks up on you, you can go to settings and force stop in app management.  You can also clear data and cache if they still are being a nuisance.  Do you use the Fire TV app to navigate at all?  It works great if the voice commands aren’t working.

        • #17092
          Kevin Schaefer
          Keymaster

          I have the remote that came with it. If there’s an issue I’m ok using that. The buttons are significantly easier to press than they are on a regular remote.

    • #17134
      DeAnn R
      Keymaster

      It’s funny, I was at my Mom’s over the weekend. She has my old Firestick. Countless times I almost started talking to it like I do with the cube. Thankfully I caught myself, but I kind of missed it.

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