The Morale Monologue #27 - I Am Unable To Travel On Planes And I Blame The FAA

The importance of newborn screening for SMA

Rory and Carolyn met in seminary, fell in love, and got married. They decided to hold off on starting their own family while they settled into their first jobs in North Dakota. After a few years, they moved to Minnesota, where Rory accepted a job as a minister, and Carolyn enrolled in a hospital chaplain residency program. At the time, they did not know how important the decision to move would be for their future family. When they moved, neither North Dakota nor Minnesota had SMA on their newborn screening panel. It wasn’t until March 2018 that Minnesota adopted and implemented newborn screening for SMA, and then several months later, in 2018, Rory and Carolyn’s only son Edan was born.

Tagged: accessible travel, flight accommodations, The Morale Monologue, The SMA News Today YouTube Channel

This topic has 2 replies, 3 voices, and was last updated 1 year, 3 months ago by Ryan Berhar.

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- July 3, 2019 at 7:00 am #19630
  
  Michael Morale
  Keymaster
  
  In this episode of the Morale Monologue, I discuss my frustrations with flying for wheelchair-users. I talk about the FAA regulations regarding safety, and not being able to travel on a plane in my wheelchair.
  
  This is an issue that many of us with disabilities have to deal with. It’s time that those of us in chairs have the same abilities and freedoms as able-bodied individuals.
  
  Please let me know your thoughts. Thank you.
  
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- July 3, 2019 at 5:48 pm #19646
  
  Kevin Schaefer
  Keymaster
  
  Thanks for making this video!
  
  As you know, I had an unfortunate experience flying to and from California for the conference this year. The airline employees dropped my chair three separate times, which of course caused severe damage. I got it mostly repaired today, but we’re still waiting on a few parts.
  
  The crazy thing is that airlines don’t save any money, because they’re the ones paying for repairs. I was trying to explain it to a friend the other day, but it still blows my mind.
- July 3, 2019 at 7:26 pm #19647
  
  Ryan Berhar
  Member
  
  Thanks for addressing this issue. It grinds my gears like nothing else.
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