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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”

This topic has 2 replies, 3 voices, and was last updated 1 year, 1 month ago by Ryan Berhar.

  • Author
    • #19630
      Michael Morale

      In this episode of the Morale Monologue, I discuss my frustrations with flying for wheelchair-users. I talk about the FAA regulations regarding safety, and not being able to travel on a plane in my wheelchair.

      This is an issue that many of us with disabilities have to deal with. It’s time that those of us in chairs have the same abilities and freedoms as able-bodied individuals.

      Please let me know your thoughts. Thank you.


      Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseases. Visit http://www.exploregenetherapy.com


    • #19646
      Kevin Schaefer

      Thanks for making this video!

      As you know, I had an unfortunate experience flying to and from California for the conference this year. The airline employees dropped my chair three separate times, which of course caused severe damage. I got it mostly repaired today, but we’re still waiting on a few parts.

      The crazy thing is that airlines don’t save any money, because they’re the ones paying for repairs. I was trying to explain it to a friend the other day, but it still blows my mind.

    • #19647
      Ryan Berhar

      Thanks for addressing this issue. It grinds my gears like nothing else.

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