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    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 2 replies, has 3 voices, and was last updated by  Ryan Berhar 1 month, 2 weeks ago.

    • Author
      Posts
    • #19630
       Michael Morale 
      Keymaster

      In this episode of the Morale Monologue, I discuss my frustrations with flying for wheelchair-users. I talk about the FAA regulations regarding safety, and not being able to travel on a plane in my wheelchair.

      This is an issue that many of us with disabilities have to deal with. It’s time that those of us in chairs have the same abilities and freedoms as able-bodied individuals.

      Please let me know your thoughts. Thank you.

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    • #19646
       Kevin Schaefer 
      Keymaster

      Thanks for making this video!

      As you know, I had an unfortunate experience flying to and from California for the conference this year. The airline employees dropped my chair three separate times, which of course caused severe damage. I got it mostly repaired today, but we’re still waiting on a few parts.

      The crazy thing is that airlines don’t save any money, because they’re the ones paying for repairs. I was trying to explain it to a friend the other day, but it still blows my mind.

    • #19647
       Ryan Berhar 
      Keymaster

      Thanks for addressing this issue. It grinds my gears like nothing else.

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