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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 2 replies, 3 voices, and was last updated 5 months ago by Ryan Berhar.

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      • #19630
        Michael Morale
        Keymaster

        In this episode of the Morale Monologue, I discuss my frustrations with flying for wheelchair-users. I talk about the FAA regulations regarding safety, and not being able to travel on a plane in my wheelchair.

        This is an issue that many of us with disabilities have to deal with. It’s time that those of us in chairs have the same abilities and freedoms as able-bodied individuals.

        Please let me know your thoughts. Thank you.

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      • #19646
        Kevin Schaefer
        Keymaster

        Thanks for making this video!

        As you know, I had an unfortunate experience flying to and from California for the conference this year. The airline employees dropped my chair three separate times, which of course caused severe damage. I got it mostly repaired today, but we’re still waiting on a few parts.

        The crazy thing is that airlines don’t save any money, because they’re the ones paying for repairs. I was trying to explain it to a friend the other day, but it still blows my mind.

      • #19647
        Ryan Berhar
        Participant

        Thanks for addressing this issue. It grinds my gears like nothing else.

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