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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 1 reply, 2 voices, and was last updated 4 months, 1 week ago by DeAnn R.

    • Author
      • #19860
        Michael Morale


        In this episode of the Morale Monologue, I share my tips and tricks on how to avoid getting a headache after one of your Spinraza injections. Headaches are a normal side effect with any intrathecal or spinal cord injection, and the tips that I’m sharing with you, will possibly help you to avoid getting one of these headaches during your Spinraza procedures.


        Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseases. Visit http://www.exploregenetherapy.com


      • #20006
        DeAnn R

        Thankfully I haven’t experienced this side effect. It’s the first thing I get asked by the nurses and doctors though, so it kind of makes me paranoid.

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