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    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 1 reply, has 2 voices, and was last updated by  DeAnn R 3 weeks, 2 days ago.

    • Author
      Posts
    • #19860
       Michael Morale 
      Keymaster

       

      In this episode of the Morale Monologue, I share my tips and tricks on how to avoid getting a headache after one of your Spinraza injections. Headaches are a normal side effect with any intrathecal or spinal cord injection, and the tips that I’m sharing with you, will possibly help you to avoid getting one of these headaches during your Spinraza procedures.

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      Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseases. Visit http://www.exploregenetherapy.com

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    • #20006
       DeAnn R 
      Keymaster

      Thankfully I haven’t experienced this side effect. It’s the first thing I get asked by the nurses and doctors though, so it kind of makes me paranoid.

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