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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 1 reply, 2 voices, and was last updated 1 month, 3 weeks ago by Ryan Berhar.

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      • #20954
        Michael Morale
        Keymaster

        In this episode of the Morale Monologue, I’m sharing an email that I received from one of my subscribers to my personal YouTube channel. My subscriber asked how I continue to remain optimistic while living with SMA. I give her my reasons regarding my optimism and enthusiasm, and I’m sharing this with you in the hopes that it will brighten your day and give you something to look forward to.

        Hope you all enjoy this video! If you haven’t already, please subscribe to the SMA News Today YouTube channel. We’d greatly appreciate it.

        Do you have any takeaways from this video? How do you remain optimistic despite living with SMA?

         

      • #20981
        Ryan Berhar
        Participant

        This is certainly very true. Even though I’m not on spinraza, there’s just more of a general sense of hope now about SMA than there was before.

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