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This topic has 1 reply, 2 voices, and was last updated 7 months, 3 weeks ago by Alyssa Silva.

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    • #21365
      Kevin Schaefer
      Keymaster

      Hey everyone! Hope you’re all having a great week so far.

      Check out the latest episode of the SMA News Today Podcast here. In this roundtable discussion, Michael and I talk about several recent news stories and columns. The first story we look at is about how risdiplam is enhancing the motor function of people with SMA types 2 and 3. We share our thoughts about what this could mean for adults with SMA in the future.

      We then discuss a more controversial story about AveXis putting its STRONG trial on temporary hold. Michael and I address some of the misconceptions surrounding this news, and we share our thoughts.

      Finally, we talk about a couple of our recent columns. The first is one I wrote about having a strong quality of life while living with SMA. The second is Kala’s column about how progression looks different for those of us with SMA.

      Let us know your thoughts on this episode! We’d love to hear from you all. 

    • #21377
      Alyssa Silva
      Keymaster

      Such an informative podcast! I had heard about AveXis putting that trial on hold but wasn’t exactly sure why, so thank you for clarifying that.

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