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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 1 reply, 1 voice, and was last updated 1 year ago by Kevin Schaefer.

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    • #19837
      Kevin Schaefer
      Keymaster

      Happy Tuesday everyone!

      Check out the latest episode of the SMA News Today Podcast here. Michael and I talk about updates regarding SMA therapies Spinraza and Reldesemtiv in the news section. We then discuss one of Kala Godin’s recent columns, “Preparing for the Plastic Apocalypse”.

       

      Also, columnist Brianna Albers joins us on this episode. She and I share our experiences from the 2019 Cure SMA conference, which took place in Anaheim, California. Plus, we talk about visiting the new Star Wars theme park.

      I hope you all enjoy this episode. Please let me know your thoughts in the comments, and if you have any questions. Thanks everyone, and have a great day!

    • #19894
      Kevin Schaefer
      Keymaster

      Quick correction: I said in the episode that Reldesemtiv was developed by Genentech. It was developed by Cytokinetics, and Risdiplam was developed by Genentech. My bad! Journalists still make mistakes, but I just wanted to correct myself. Thanks!

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