Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”
Hey everyone! Hope you’re all staying safe, healthy, and as sane as humanly possible right now.
To get your minds off of all this craziness, check out the latest episode of the SMA News Today podcast here. I chat with Victor Guerra from Fresno, California. Victor is an entrepreneur who has SMA Type 2, and he uses his online store to promote messages of positivity and motivation. He talks about growing up with SMA, building his business, and dealing with medical setbacks throughout his life.
This conversation is a roller-coaster, and I hope you all enjoy hearing Victor’s story. Let me know your thoughts, and follow Victor on Instagram!
Do you have any takeaways from this conversation?
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FDA Approves ZOLGENSMA for SMA! Talk about it now — click below:
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.