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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”

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    • #22997
      Kevin Schaefer

      Hey everyone! Hope you’re all staying safe, healthy, and as sane as humanly possible right now.

      To get your minds off of all this craziness, check out the latest episode of the SMA News Today podcast here. I chat with Victor Guerra from Fresno, California. Victor is an entrepreneur who has SMA Type 2, and he uses his online store to promote messages of positivity and motivation. He talks about growing up with SMA, building his business, and dealing with medical setbacks throughout his life.

      This conversation is a roller-coaster, and I hope you all enjoy hearing Victor’s story. Let me know your thoughts, and follow Victor on Instagram

      Do you have any takeaways from this conversation? 

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