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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”

This topic has 1 reply, 1 voice, and was last updated 3 months ago by Alyssa Silva.

  • Author
    • #23400
      Kevin Schaefer

      Hey everyone! Hope you’re all staying safe and healthy. In case anyone forgot what month it was, it’s May.

      I invite you all to check out the latest edition of the SMA News Today podcast here. In this episode, I interview Heather Kerstetter from Philadelphia, Pennsylvania. Heather is a social worker who has SMA Type 3. She talks in-depth about growing up with SMA, and her career and relationships. We also discuss things like her advocacy work for people with disabilities, and living independently.

      Hope you all enjoy! It was a great conversation, and Heather brought up some really valuable topics.

      Do you have any takeaways from Heather’s story? Can you relate to it?

    • #23421
      Alyssa Silva

      Heather is awesome. Also, the number of things she has already accomplished in 2020 really goes to show she truly embodies her “be fearless” attitude. Can’t wait to watch her succeed in post-grad life!

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