• Posted by alyssa-silva on April 10, 2023 at 11:09 am

    Happy belated Easter and Passover to those who celebrate! It’s time to introduce our new March members.






    It’s so fun getting to know our new members, so we figured we’ll make this a monthly tradition. We’d love for you to introduce yourself! Here are some prompts to get you started, but feel free to tell us what you’re most comfortable sharing.

    Where in the world are you from?

    Do you have SMA or know someone who does?

    Are you on any treatments?

    What hobbies do you have?

    Do you have music preferences?

    If you could shout something from the rooftop, what would it be?

    We look forward to getting to know you!

    alyssa-silva replied 1 month, 2 weeks ago 3 Members · 4 Replies
  • 4 Replies
  • matthew

    April 10, 2023 at 11:54 am

    My name is Matthew, I’m from Texas and I have SMA Type 2. I currently am doing the oral dose Evrysdi but I dont notice it doing anything….my hobbies are videos. games  and isolating myself in my room in between manic episodes. I love heavy metal and jazz classical rap music basically everything but country music. As far as shouting something from the rooftop I don’t see the need to be up there let alone shout something? If I did shout something it probably wouldn’t be anything appropriate. I also have Borderline personality disorder and I’m not a reliable person!

    • deann-r

      April 10, 2023 at 9:29 pm

      No country music? You’re breaking my heart, my achy breaky heart, lol. Seriously though it’s great to have you with us, manic episodes and all. We have quite a few gamers in the group, so maybe we can get a discussion going about that. What do you play?

      • matthew

        April 11, 2023 at 9:09 am

        I play league of legends, hearthstone etc.. I play a lot of video games lol

  • alyssa-silva

    April 11, 2023 at 9:21 pm

    Great to have you here Matthew! Gotta admit I’m a country fan too. I get it though. It’s not for everyone. Thanks for introducing yourself. 🙂