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Where to get the treatment?
Hi all, and thank you in advance for any information!
I am from Serbia (living in US for a while now), and I am trying to help a 13 year old girl living there with SMA type 2 to get Spinraza treatment. She was recommended this several years ago, but at first the treatment was not available in Serbia. Then it got available, but only for up to certain age that she has already passed. Long story short, the doctor told parents to go abroad and pay for the treatment, and that she is to receive it ASAP. She was recommended 6 treatments, and that was 3 years ago. The parents are finally ready financially to pay out of pocket for the medication after all this time of fundraising.
I am tasked to help them find where to go. Does anyone know how to go about this? I can start emailing hospitals, but any advice is appreciated – and any contact information.
Thank you all!
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