There can’t be many people in the SMA community who haven’t heard the great news about the U.S. Food…
Articles by Wendy Henderson
Caring for someone with spinal muscular atrophy will present many challenges along the way. As your child grows, these challenges…
In this informative National Geographic Channel video shared by Haikal Mansor in 2011, we find out about muscles,…
This short video from MuscleOwl shares the facts about the FDA’s approval of Spinraza (nusinersen). The approval is great news…
In this emotional video shared by Sazan Hendrix, a group of old college friends decide to pay a…
This video from Youreka Science explains exactly how the newly FDA-approved drug, nusinersen, works in helping children with spinal muscular atrophy…
In this Fight SMA annual webcast from 2014, a panel consisting of Dr. Chris Lorson, Dr. Elliot Androphy, Dr.
A spinal muscular atrophy (SMA) diagnosis is an incredible blow to families, as their child is often just a…
In this video from The Joy FM, we see part of the Florida-based radio station’s 30-year celebration, 30…
In this video from Beike Biotech, we meet five-year-old Reagan and her nurse, Tonya. Tonya explains that Reagan…