Cure SMA’s Webinar on the FDA Approval of Spinraza
There can’t be many people in the SMA community who haven’t heard the great news about the U.S. Food…
Articles by Wendy Henderson
6 Tips to Help You Manage Life With SMA
Caring for someone with spinal muscular atrophy will present many challenges along the way. As your child grows, these challenges…
How Muscles are Affected by SMA and Dystonia
In this informative National Geographic Channel video shared by Haikal Mansor in 2011, we find out about muscles,…
FDA Approves Spinraza (Nusinersen)
This short video from MuscleOwl shares the facts about the FDA’s approval of Spinraza (nusinersen). The approval is great news…
SMA Stories: Meeting Captain Jack
In this emotional video shared by Sazan Hendrix, a group of old college friends decide to pay a…
How Does Nusinersen Work in Treating SMA?
This video from Youreka Science explains exactly how the newly FDA-approved drug, nusinersen, works in helping children with spinal muscular atrophy…
FightSMA’s Annual Webcast Panel Talk
In this Fight SMA annual webcast from 2014, a panel consisting of Dr. Chris Lorson, Dr. Elliot Androphy, Dr.
Fighting Spinal Muscular Atrophy as a Family
A spinal muscular atrophy (SMA) diagnosis is an incredible blow to families, as their child is often just a…
SMA Patient Gets His Wish of a Roll-in Shower
In this video from The Joy FM, we see part of the Florida-based radio station’s 30-year celebration, 30…
SMA Stories: Reagan’s Stem Cell Treatment
In this video from Beike Biotech, we meet five-year-old Reagan and her nurse, Tonya. Tonya explains that Reagan…