Spinraza (Nusinersen) was approved by the FDA in December 2016 for the treatment of children and adults with spinal muscular atrophy (SMA). It’s had the SMA community buzzing the world ... Read more

In 2013, Collin Pollock decided to combine his living with SMA with his lifelong passion for barbecue. Pollock’s business WheelyQ Barbecue Sauces & Rubs not only produces authentic and ... Read more

Documentary filmmaker Gareth Burghes first heard of spinal muscular atrophy (SMA) through his father’s work as a geneticist. He soon became aware of ongoing clinical trials that were studying a breakthrough ... Read more

Melissa Milinovich is a regular speaker at SMA conferences and uses her social media platforms to educate others about life with SMA. Over the past year, she’s been chronicling ... Read more

If and when the subject of disability and dating arises in popular media, it tends to be oversimplified and filled with gross sentimentality. Films such as the 2016 romantic ... Read more

The first part of this series provides information on the seven main forum discussions on SMA News Today, as well as how to make a profile and create posts. ... Read more

SMA News Today is proud to present our new forums page. This page is designed to help readers better connect with each other, ask questions and engage with others ... Read more

With the holiday season in full swing, it’s the perfect opportunity to take a look back at 2017. It’s been a year full of ups and downs, and while ... Read more

In this HuffPost video, artist Dwayne Szot shares his amazing painting invention. Szot wanted children with disabilities to experience the joys of art but knew that many could not hold pens ... Read more