Danyelle Sun is the mother of two children with SMA, and is also a spokesperson within the SMA community. In 2017, she took part in the Patient Focused Drug ... Read more

In the latest episode of the SMA News Today podcast, Dr. Danielle Sheypuk shares her perspective on the topic of disability and dating. Sheypuk is a clinical psychologist with SMA, ... Read more

Bluetooth technology is a helpful tool in the modern world for anyone who uses a smartphone, tablet or computer on a regular basis. Connecting one of these devices to ... Read more

Spinraza (Nusinersen) was approved by the FDA in December 2016 for the treatment of children and adults with spinal muscular atrophy (SMA). It’s had the SMA community buzzing the world ... Read more

In 2013, Collin Pollock decided to combine his living with SMA with his lifelong passion for barbecue. Pollock’s business WheelyQ Barbecue Sauces & Rubs not only produces authentic and ... Read more

Documentary filmmaker Gareth Burghes first heard of spinal muscular atrophy (SMA) through his father’s work as a geneticist. He soon became aware of ongoing clinical trials that were studying a breakthrough ... Read more

Melissa Milinovich is a regular speaker at SMA conferences and uses her social media platforms to educate others about life with SMA. Over the past year, she’s been chronicling ... Read more

If and when the subject of disability and dating arises in popular media, it tends to be oversimplified and filled with gross sentimentality. Films such as the 2016 romantic ... Read more

The first part of this series provides information on the seven main forum discussions on SMA News Today, as well as how to make a profile and create posts. ... Read more