Social Clips

Danyelle Sun on Having Two Children With SMA

Danyelle Sun is the mother of two children with SMA, and is also a spokesperson within the SMA community. In 2017, she took part in the Patient Focused Drug Development conference in Maryland, which was organized by Cure SMA and the Food and Drug Administration. SMA News Today caught up…

‘SMA News Today’ Podcast Episode 4: Dr. Danielle Sheypuk

In the latest episode of the SMA News Today podcast, Dr. Danielle Sheypuk shares her perspective on the topic of disability and dating. Sheypuk is a clinical psychologist with SMA, and in her work she strives to change negative stereotypes about individuals with disabilities. Originally from Scranton, Pennsylvania, Sheypuk has…

How to Earn Money Without Having to Leave the House

Earning money is difficult, especially when living with spinal muscular atrophy (SMA). Fortunately, there are ways to supplement your income without having to leave the house. These side jobs don’t pay much, but they’re worth checking out, especially if you find yourself with extra time on your hands.

9 Commonly Asked Questions About Spinraza

Spinraza (Nusinersen) was approved by the FDA in December 2016 for the treatment of children and adults with spinal muscular atrophy (SMA). It’s had the SMA community buzzing the world over, but as the drug becomes available in more countries, there are some common questions that keep coming up. According to…

Adults With SMA: Collin Pollock

In 2013, Collin Pollock decided to combine his living with SMA with his lifelong passion for barbecue. Pollock’s business WheelyQ Barbecue Sauces & Rubs not only produces authentic and original sauces, but a portion of the company’s profits go directly towards SMA research. Pollock runs the business from his home…

Adults With SMA: Melissa Milinovich

Melissa Milinovich is a regular speaker at SMA conferences and uses her social media platforms to educate others about life with SMA. Over the past year, she’s been chronicling her Spinraza journey on her YouTube channel, as well as on Facebook and Twitter. She lives in Amelia, Ohio with her…