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Thinking Ahead
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in: Adults With SMA
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Disability vs. disease: are they interchangeable?
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Life Post-Pandemic
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Motivation Monday: Socially Distanced Visits
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How Are You Celebrating Disability Pride Month?
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in: Raising Awareness of SMA
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Summer Heat
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Would greatly appreciate your feedback!
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Motivation Monday: Neighborhood Walks
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Columnist Writes About Teaching Children About Disability
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Avoiding Social Media for My Mental Health
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Trying Something New
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in: The SMA News Today YouTube Channel
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Columnist Writes About Birthdays and Adventures
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Learning to Embrace Your Differences
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- 2 months, 3 weeks ago
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Update on Nausea and Matcha
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Columnist Writes About SMA My Way
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Thinking Ahead
Sponsored Post
The importance of newborn screening for SMA
Rory and Carolyn met in seminary, fell in love, and got married. They decided to hold off on starting their own family while they settled into their first jobs in North Dakota. After a few years, they moved to Minnesota, where Rory accepted a job as a minister, and Carolyn enrolled in a hospital chaplain residency program. At the time, they did not know how important the decision to move would be for their future family. When they moved, neither North Dakota nor Minnesota had SMA on their newborn screening panel. It wasn’t until March 2018 that Minnesota adopted and implemented newborn screening for SMA, and then several months later, in 2018, Rory and Carolyn’s only son Edan was born.
FDA Approves ZOLGENSMA for SMA! Talk about it now — click below:
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