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Having a High Quality of Life While Living With SMA
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in: Adults With SMA
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- 3 weeks, 1 day ago
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How do you handle a caregiver getting sick?
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in: SMA Parents and Caregivers
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- 3 weeks, 4 days ago
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Daylight Savings Time
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in: Adults With SMA
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- 4 weeks ago
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Columnist Writes About the Bittersweet Feeling of Autumn
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in: Adults With SMA
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- 1 month ago
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Motivation Monday: Journaling
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- 1 month ago
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Columnist Writes About Embracing the Spirit of Halloween
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- 1 month ago
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The SMA News Today Podcast #45: Jim and Becky Berry
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- 1 month ago
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Avoiding Frozen Tears
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in: Adults With SMA
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- 1 month, 2 weeks ago
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Columnist Writes About Unique Adolescent Experiences With SMA
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- 1 month, 3 weeks ago
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Motivation Monday: Adventuring
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- 1 month, 3 weeks ago
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Columnist Fulfills Her Role as Maid of Honor
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in: Adults With SMA
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- 1 month, 3 weeks ago
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Columnist Reflects on Her Life as Her Birthday Approaches
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in: Adults With SMA
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- 2
- 1 month, 3 weeks ago
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Flu Shots
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- 1 month, 3 weeks ago
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Lightweight Eco-friendly Utensils
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in: SMA Assistive Technology/Equipment
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- 1 month, 4 weeks ago
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Having a High Quality of Life While Living With SMA
Sponsored Post
Adapting to Life Outside Our Home With SMA
I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.
I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.
FDA Approves ZOLGENSMA for SMA! Talk about it now — click below:
Newest Topics
Sponsored Post
Planes, Trains, & Accessible Travel With SMA
Talk to your doctor to determine if you or your child is fit to travel.
Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.
I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.
