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This topic has 3 replies, 3 voices, and was last updated 2 years, 5 months ago by Ryan Berhar.

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    • #15635
      Kevin Schaefer
      Keymaster

      Read my latest column about my adventures at the 2018 North Carolina Comicon and lining up caregivers: https://smanewstoday.com/2018/11/20/sma-orchestrating-care-north-carolina-comicon-weekend/.

      I hope you can find some encouragement from this piece. It requires a lot of planning and figuring out logistics, but it’s very possible for those of us with SMA to have a weekend with friends and gain more independence. Feel free to ask me any questions you have about finding caregivers, handling logistical factors or anything else.

    • #15658
      DeAnn R
      Keymaster

      Glad you were able to get everything lined up. It can certainly take a lot of planning ahead, and like you mentioned even when you think you have a plan it can fall through.  It’s definitely worth the extra planning to do something you enjoy.

      • #15660
        Kevin Schaefer
        Keymaster

        Thanks! And yes backup plans are always good to have.

    • #15676
      Ryan Berhar
      Keymaster

      Great column! Glad you could pull this off.

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