-
Are Any of You Looking Into Other Treatments?
I know that Spinraza is still the only FDA-approved treatment for SMA, but it’s an exciting time with other drugs in the pipeline. As our vlogger Michael Morale discussed in his last video, the company Cytokinetics is expected to make an announcement regarding their drug Reldesemetiv at this year’s Cure SMA conference, and AveXis is making big advancements as well.
I’m just curious if any of you have asked your specialists about any of these clinical trial drugs. Or if there is anyone here who has a child who is participating in a clinical trial, what has the experience been like? Which drug do they receive, and what effects have you seen so far?
Log in to reply.