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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 1 reply, 2 voices, and was last updated 10 months ago by DeAnn R.

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    • #20857
      Brianna Albers
      Keymaster

      Happy October everyone!

      In her latest column, Alyssa reflects on her very first wheelchair: a Jaguar. It took her a while to get the hang of driving. However, she was—and still is—grateful for the freedom it gave her as a toddler. She’s had her current wheelchair for 10 years, and her physical therapist has made the executive decision: it’s time for a new one.

      Alyssa was initially dreading the process of getting a new wheelchair, but she’s starting to warm up to the idea. She doesn’t like change, but she knows it’s time for change. Her current wheelchair is falling apart, and at the end of the day, she’s lucky that she can afford a new one in the first place. The process is long and arduous, but it’ll be worth it.

      Do you have any tips for Alyssa as she embarks on this journey?

    • #20912
      DeAnn R
      Keymaster

      So far I’m putting off getting a new chair. Even though I would like a few more features than what I have I love my current chair. I can definitely relate to Alyssa.

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