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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 1 reply, 2 voices, and was last updated 1 month, 3 weeks ago by DeAnn R.

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      • #20857
        Brianna Albers
        Keymaster

        Happy October everyone!

        In her latest column, Alyssa reflects on her very first wheelchair: a Jaguar. It took her a while to get the hang of driving. However, she was—and still is—grateful for the freedom it gave her as a toddler. She’s had her current wheelchair for 10 years, and her physical therapist has made the executive decision: it’s time for a new one.

        Alyssa was initially dreading the process of getting a new wheelchair, but she’s starting to warm up to the idea. She doesn’t like change, but she knows it’s time for change. Her current wheelchair is falling apart, and at the end of the day, she’s lucky that she can afford a new one in the first place. The process is long and arduous, but it’ll be worth it.

        Do you have any tips for Alyssa as she embarks on this journey?

      • #20912
        DeAnn R
        Keymaster

        So far I’m putting off getting a new chair. Even though I would like a few more features than what I have I love my current chair. I can definitely relate to Alyssa.

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