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    Planes, Trains, & Accessible Travel With SMA

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    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 1 reply, has 2 voices, and was last updated by  DeAnn R 1 week, 4 days ago.

    • Author
    • #20857
       Brianna Albers 

      Happy October everyone!

      In her latest column, Alyssa reflects on her very first wheelchair: a Jaguar. It took her a while to get the hang of driving. However, she was—and still is—grateful for the freedom it gave her as a toddler. She’s had her current wheelchair for 10 years, and her physical therapist has made the executive decision: it’s time for a new one.

      Alyssa was initially dreading the process of getting a new wheelchair, but she’s starting to warm up to the idea. She doesn’t like change, but she knows it’s time for change. Her current wheelchair is falling apart, and at the end of the day, she’s lucky that she can afford a new one in the first place. The process is long and arduous, but it’ll be worth it.

      Do you have any tips for Alyssa as she embarks on this journey?

    • #20912
       DeAnn R 

      So far I’m putting off getting a new chair. Even though I would like a few more features than what I have I love my current chair. I can definitely relate to Alyssa.

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