Log In or Register to Join The Conversation!

Sponsored Post

The importance of newborn screening for SMA

Rory and Carolyn met in seminary, fell in love, and got married. They decided to hold off on starting their own family while they settled into their first jobs in North Dakota. After a few years, they moved to Minnesota, where Rory accepted a job as a minister, and Carolyn enrolled in a hospital chaplain residency program. At the time, they did not know how important the decision to move would be for their future family. When they moved, neither North Dakota nor Minnesota had SMA on their newborn screening panel. It wasn’t until March 2018 that Minnesota adopted and implemented newborn screening for SMA, and then several months later, in 2018, Rory and Carolyn’s only son Edan was born.


This topic has 2 replies, 2 voices, and was last updated 3 weeks ago by Brianna Albers.

  • Author
    Posts
    • #24495
      Brianna Albers
      Keymaster

      Happy Tuesday! During my recent appointment, I decided to ask my doctor about getting an SPC during COVID. I’ve decided to wait, but the conversation triggered my deep-seated fear of surgery and anesthetic in particular.

      In my latest column, I talk about my favorite character from the British TV show, “Call the Midwife,” Sister Monica Joan, who’s similarly afraid of surgery.

      Have any of you seen “Call the Midwife”? Do you have similar feelings when it comes to surgeries?

    • #24510
      DeAnn R
      Keymaster

      I avoid surgery if at all possible. Wish I had known about SPC’s when I was around your age because I don’t want to do the surgery now that I’m older. It doesn’t help that I had a bad experience being put under. Many people have positive experiences though, so if you talk with your team about your concerns it might help put your mind at ease.

      Love “Call the Midwife.” I’m a season behind but still waiting to see a diagnosis of SMA.

    • #24736
      Brianna Albers
      Keymaster

      Omg yes! I would love that. I’ve been really impressed with how they’ve handled rare diseases.

      Sorry to hear about your bad experience – I feel you there. I’ve decided to postpone till there’s a COVID vaccine, but still planning on getting an SPC soon.

Viewing 2 reply threads
  • You must be logged in to reply to this topic.

©2020 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending
or

Log in with your credentials

or    

Forgot your details?

or

Create Account

Copyright © 2017-2020 All rights reserved.