SMA News Forums Forums Our Community Adults ​With​ ​SMA Columnist Writes About Fear of Surgery

  • deann-r

    August 12, 2020 at 9:53 am

    I avoid surgery if at all possible. Wish I had known about SPC’s when I was around your age because I don’t want to do the surgery now that I’m older. It doesn’t help that I had a bad experience being put under. Many people have positive experiences though, so if you talk with your team about your concerns it might help put your mind at ease.

    Love “Call the Midwife.” I’m a season behind but still waiting to see a diagnosis of SMA.

  • brianna-albers

    September 4, 2020 at 1:42 pm

    Omg yes! I would love that. I’ve been really impressed with how they’ve handled rare diseases.

    Sorry to hear about your bad experience – I feel you there. I’ve decided to postpone till there’s a COVID vaccine, but still planning on getting an SPC soon.

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