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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 2 replies, 2 voices, and was last updated 4 months ago by Ryan Berhar.

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      • #20058
        Ryan Berhar
        Participant

        Hey everyone, here’s my newest column. I talked about the obstacles associated with an outdoor wedding I recently attended. We SMAers like to plan meticulously, but that’s not always possible. Sometimes you have to improvise a bit. Do you have any similar experiences or questions?

        Prepared for the Worst: How I Navigated an Outdoor Wedding

      • #20070
        DeAnn R
        Keymaster

        Great article! Funny, my next video is going to be on navigating outdoor events. I have many of the same concerns, but as you said in the end you just have to go with it. I think you should still get a picture with Jack holding an umbrella just because it would look cool. Call it Dancing in the Rain.

        • #20076
          Ryan Berhar
          Participant

          Right. It doesn’t rain in Bend much. Maybe I can do that in Portland sometime though haha

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