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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 2 replies, 2 voices, and was last updated 1 year ago by Ryan Berhar.

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    • #20058
      Ryan Berhar
      Member

      Hey everyone, here’s my newest column. I talked about the obstacles associated with an outdoor wedding I recently attended. We SMAers like to plan meticulously, but that’s not always possible. Sometimes you have to improvise a bit. Do you have any similar experiences or questions?

      Prepared for the Worst: How I Navigated an Outdoor Wedding

    • #20070
      DeAnn R
      Keymaster

      Great article! Funny, my next video is going to be on navigating outdoor events. I have many of the same concerns, but as you said in the end you just have to go with it. I think you should still get a picture with Jack holding an umbrella just because it would look cool. Call it Dancing in the Rain.

      • #20076
        Ryan Berhar
        Member

        Right. It doesn’t rain in Bend much. Maybe I can do that in Portland sometime though haha

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