SMA News Forums Forums Our Community 31 Days of SMA 2021 31 Days of SMA 2022 Day 3 of #31DaysofSMA: Instead of a Horse, I Got a Wheelchair

  • deann-r

    August 4, 2022 at 12:14 pm

    Stories like Stéphanie’s remind us that yes, there are struggles while dealing with SMA. Sometimes I feel like it’s more difficult as an adult with a disability than it was when I was a kid. I can relate to the aging parent aspect she talked about as well. Regardless of the hardships though, like she has, I have my own interests that I’m passionate about. My ancestry has Czech ties too, so that’s kind of fun. I even call my cat kočka (pronounced like kuchka I think.) That’s Czech for cat.

  • alyssa-silva

    August 5, 2022 at 12:26 pm

    Echoing everything DeAnn has said. I really resonated with Stéphanie’s story and share her struggles. If only there were a roadmap to navigating adulthood with SMA.

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