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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

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      • #19551
        Kevin Schaefer

        Hey everyone! Hope you’re all having a great week.

        By the time this post goes up, I’ll be flying to California for the 2019 Cure SMA conference. I’ll have plenty to write about when I get back, but I did want to share my latest column first.

        In this post, I wrote about how I sometimes struggle to recognize my own limitations. Especially since I started Spinraza and my energy levels have improved, I tend to push myself pretty hard. Though I enjoy being productive and working, I’m also recognizing my need for rest and relaxation as well. It’s fitting that I’m taking a few days off this week for the conference.

        Can you all relate to this concept? Do you put limits on yourself?

        Hope you all have a great rest of the week! I’ll be back here in a few days.

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