• Sponsored Post

    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.


  • This topic is empty.

    • Author
      Posts
      • #19551
        Kevin Schaefer
        Keymaster

        Hey everyone! Hope you’re all having a great week.

        By the time this post goes up, I’ll be flying to California for the 2019 Cure SMA conference. I’ll have plenty to write about when I get back, but I did want to share my latest column first.

        In this post, I wrote about how I sometimes struggle to recognize my own limitations. Especially since I started Spinraza and my energy levels have improved, I tend to push myself pretty hard. Though I enjoy being productive and working, I’m also recognizing my need for rest and relaxation as well. It’s fitting that I’m taking a few days off this week for the conference.

        Can you all relate to this concept? Do you put limits on yourself?

        Hope you all have a great rest of the week! I’ll be back here in a few days.

    Viewing 0 reply threads
    • You must be logged in to reply to this topic.

    ©2020 KLEO Template a premium and multipurpose theme from Seventh Queen

    CONTACT US

    We're not around right now. But you can send us an email and we'll get back to you, asap.

    Sending
    or

    Log in with your credentials

    or    

    Forgot your details?

    or

    Create Account

    Copyright © 2017-2020 All rights reserved.