SMA News Forums Forums Treatments and Research Spinraza (nusinersen) Despite Gains from Spinraza, I Still Have Limitations

  • Despite Gains from Spinraza, I Still Have Limitations

    Posted by kevin-schaefer on June 26, 2019 at 7:00 am

    Hey everyone! Hope you’re all having a great week.

    By the time this post goes up, I’ll be flying to California for the 2019 Cure SMA conference. I’ll have plenty to write about when I get back, but I did want to share my latest column first.

    In this post, I wrote about how I sometimes struggle to recognize my own limitations. Especially since I started Spinraza and my energy levels have improved, I tend to push myself pretty hard. Though I enjoy being productive and working, I’m also recognizing my need for rest and relaxation as well. It’s fitting that I’m taking a few days off this week for the conference.

    Can you all relate to this concept? Do you put limits on yourself?

    Hope you all have a great rest of the week! I’ll be back here in a few days.

    kevin-schaefer replied 4 years, 11 months ago 1 Member · 0 Replies
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