SMA News Forums Forums Our Community Adults ​With​ ​SMA Does Caffeine Help You?

  • Does Caffeine Help You?

    Posted by kevin-schaefer on June 29, 2018 at 9:00 am

    I’m kind of a soda addict, and it definitely helps me get through the workday. I usually have two to three Cokes/Mountain Dews on a daily basis. My eurologist even suggested lime sodas for me, as it helps me prevent kidney stones.

    I’m not suggesting you become a soda addict, but personally I find the caffeine and all to help me with my energy levels. Spinraza has also helped a lot in this respect, as I’m generally less fatigued than I used to be.

    What about you all? Are any of you big soda-drinkers? Do you have any other tips for staying focused and energized during the day? Share your thoughts and suggestions.

    michael-morale replied 5 years, 9 months ago 8 Members · 12 Replies
  • 12 Replies
  • ryan-berhar-2

    Member
    June 29, 2018 at 6:31 pm

    I’m a coffee addict. While I have never drank it for the caffeine, it does give me a boost of energy in the afternoon.

    • kevin-schaefer

      Member
      July 1, 2018 at 7:15 pm

      Yeah that’s when I need it too. Glad coffee works for you.

  • adnan-hafizovic

    Member
    July 2, 2018 at 6:59 am

    I like also coffee ,specially  I like turkish coffee and also helps me to give more energy and I m not sleepy during the day.But we must carefull that we don t consume to much.

    • kevin-schaefer

      Member
      July 2, 2018 at 1:27 pm

      I definitely agree that you don’t want to consume too much, but that’s good to find what works for you.

  • deann-r

    Member
    July 2, 2018 at 7:58 am

    I was an avid Mountain Dew drinker during my college years.  When I was in the hospital a few years back they put me on medicine for a fast heart rate.  I’m sure it has more to do with breathing issues but I decided to cut back on caffeine.

    It is interesting though, even my doctor is recommending caffeine to help prevent and reduce spinal headaches from the Spinraza injections.  So far I haven’t needed it, but I’ve heard it’s helped.

    • kevin-schaefer

      Member
      July 2, 2018 at 1:29 pm

      Yeah I drink a lot of Mountain Dew the day before and the day of an injection. It helps me for sure. I’m five injections in, and I have yet to get a spinal headache.

  • adnan-hafizovic

    Member
    July 3, 2018 at 5:14 am

    hey does anyone drinks energy drinks for example Red Bull?I drink sometimes and give little energy.

    • kevin-schaefer

      Member
      July 3, 2018 at 10:18 am

      Those are a little too strong for me, especially Red Bull. But if you can handle them they can definitely give you an energy boost.

  • dennis-turner

    Member
    July 3, 2018 at 12:54 pm

    I used to live on coke. Then switched to coffee. Therefore I can honestly say caffeine helps with life.

  • mike-huddleston

    Member
    July 3, 2018 at 8:57 pm

    I drink Tazo’s Awake tea every day.  It’s a black tea with a decent amount of caffeine, about 60 mg.  Just one of those in the morning and then 100% water the rest of the day.   On the days I go into the office, I get up at 4 a.m.  I have about 1/2 cup of coffee after the tea, then water.  Never touch soda.  I fear energy drinks and have never had one.  Fear may be too strong of a word.

    Have not (knock knock) had headaches with the Spinraza treatments, at least through the first 4 loading doses.

  • habib-diallo

    Member
    July 21, 2018 at 12:44 pm

    <p style=”text-align: center;”>hi i use to drink red bull. it give me a little energy</p>

  • michael-morale

    Member
    July 26, 2018 at 5:55 pm

    Caffeine has never really done much for me. I love coffee, but unfortunately, if I drink too much of it, I find myself having to go to the bathroom too many times per day. When you’re caregiver is away from the house, you tried to avoid drinking something that’s going to make you go to the bathroom.

Log in to reply.