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Dose of DeAnn Episode 31: Feeding Tube Inclusiveness
Happy Tuesday everyone!
Recently, I came across a post in an SMA Facebook group, in which a family expressed their concerns about eating in front of their child. Their child has SMA and uses a feeding tube. To avoid making their child feel uncomfortable or excluded, they prefer to not eat in front of the child.
As I read this post and saw other families with the same concerns, I wanted to share my perspective on this topic. In the latest episode of “Dose of DeAnn,” I talk about why I actually prefer that people do still eat in front of me. I’ve been using a feeding tube for years, and I feel more excluded when people don’t eat around me.
Also in this episode, I talk about some ways to make using a feeding tube more inclusive. This is an important subject for many people in the SMA community, and I can understand why people who don’t have SMA may not know how to include people who use feeding tubes during mealtimes.
Do you use a feeding tube? Let me know your thoughts in the comments, or right here in the forums. Also, be sure to subscribe to the SMA News Today YouTube channel.
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