Dose of DeAnn Episode 31: Feeding Tube Inclusiveness
Happy Tuesday everyone!
Recently, I came across a post in an SMA Facebook group, in which a family expressed their concerns about eating in front of their child. Their child has SMA and uses a feeding tube. To avoid making their child feel uncomfortable or excluded, they prefer to not eat in front of the child.
As I read this post and saw other families with the same concerns, I wanted to share my perspective on this topic. In the latest episode of “Dose of DeAnn,” I talk about why I actually prefer that people do still eat in front of me. I’ve been using a feeding tube for years, and I feel more excluded when people don’t eat around me.
Also in this episode, I talk about some ways to make using a feeding tube more inclusive. This is an important subject for many people in the SMA community, and I can understand why people who don’t have SMA may not know how to include people who use feeding tubes during mealtimes.
Do you use a feeding tube? Let me know your thoughts in the comments, or right here in the forums. Also, be sure to subscribe to the SMA News Today YouTube channel.
Log in to reply.