Whew. It has been a DAY and it’s only 12 PM EST as I’m posting this. I woke up at 4, drove 1.5 hours to Boston Children’s Hospital, had a minor procedure on my ears (bilateral ear tube removal), grabbed coffee and food, took the hour drive (no traffic!) home, and began my workday before 11 AM. What in the world?
Safe to say I’m running on fumes and caffeine right now, but I wanted to hopefully get some input on ears if you had any.
I had my tubes placed almost 2 years ago due to chronic ear infections. Fluid would get trapped in my middle ear, exasperate my vertigo, and make me miserable overall. Unfortunately, the tubes worked TOO well. Mucus and blood pour out of my ears on a pretty frequent basis as a result. The tubes became infected with yeast from all these infections I’ve had, and drops weren’t helping. So I had to get the tubes removed.
We’ll see what happens now. To be honest I’m not very hopeful. I just don’t understand where all this fluid comes from, and the doctors are unsure as well. It’s been a rough journey in this regard (the info mentioned above is only a brief synopsis), so I’m just a little emotionally drained.
As someone with SMA, do you have problems with your ears? I’m wondering if it’s eustachian tube dysfunction due to SMA weakening the muscles? I’m really not sure. All I know is I wish I had some answers for peace of mind.