Evrysdi Scheduled for Delivery
Today my first shipment of Evrysdi arrives. Although I’m excited, I’m a bit apprehensive. Switching from Spinraza brings up all kinds of questions. Like, will it work as good? Am I making the right decision? Can I switch back if it doesn’t work? Despite those questions the big draw for me is that minimal labs are required. None for me in fact. My neurologist prescribed it over a telemedicine appointment just before Thanksgiving and three weeks later here it is. Well, any minute now.
Taking a daily medication bears more responsibility on my part. Since it’s a temperature and light sensitive med, there are particulars in handling it. It’s also something that from my understanding should be taken after a meal and around the same time each day. Even with those requirements I find it less stressful than coordinating Spinraza day.
My main concern is side effects. I’ve heard others mention stomach upset. Since it seems I have a sensitive stomach as I age I’m hoping that won’t be an issue. Time will tell I guess.
I’d love to hear how things are going for you! Have you made the switch? Starting for the first time? Sticking with Spinraza? No treatment? What factors into your decision?
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