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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


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    • #23112
      Michael Morale
      Keymaster

       

      Hey everyone! Hope you’re all staying safe and healthy out there.

      In this episode of the Morale Monologue, I discuss a recent decision by the FDA regarding Roche/Genentech’s experimental SMA therapy risdiplam. Recently, Roche/Genentech submitted additional data to the FDA to include older patients. This data also includes patients’ ability to receive this treatment, if and when the FDA approves it. I include information regarding why the FDA has decided to push the decision regarding risdiplam to August. I also talk about why I think this was a good decision by both Roche/Genentech, and the FDA.

       

      NOTE:  In my video, I state that I’m linking an article that was written by SMA News Today regarding this topic. However, there are two articles. Please read both articles and share them with your family and friends, and also your doctors.

       

       

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      First article

      Second article

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