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The importance of newborn screening for SMA

Rory and Carolyn met in seminary, fell in love, and got married. They decided to hold off on starting their own family while they settled into their first jobs in North Dakota. After a few years, they moved to Minnesota, where Rory accepted a job as a minister, and Carolyn enrolled in a hospital chaplain residency program. At the time, they did not know how important the decision to move would be for their future family. When they moved, neither North Dakota nor Minnesota had SMA on their newborn screening panel. It wasn’t until March 2018 that Minnesota adopted and implemented newborn screening for SMA, and then several months later, in 2018, Rory and Carolyn’s only son Edan was born.

This topic has 5 replies, 4 voices, and was last updated 2 years ago by Ryan Berhar.

  • Author
    • #14087
      Ryan Berhar


      Below is a link to the video of me taking my first drink with JACO! Hopefully everyone can view it.

    • #14088
      Mike Huddleston

      That is wonderful Ryan!  Congrats!

    • #14089
      DeAnn R

      Fantastic! I was Hoping we’d get to see it in action.

    • #14090
      Kevin Schaefer

      Awesome man!

      • #14100
        Kevin Schaefer

        You’ll also get a lot faster with it the more you use it. It took me longer at first to get used to the different modes and such. Now I don’t even think about it when I get a drink or whatever.

    • #14109
      Ryan Berhar

      Thanks everyone!

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