I was prescribed gabapentin a couple of years ago by a palliative medical doctor. I was trying to find that perfect combo of meds to deal with my pain, willing to try anything at that point. I started feeling the side effects pretty much right away. It began with the dizziness others here have mentioned which quickly turned into nausea. I also had an intense sleepiness during the daytime. But then, I had the worst thing that’s ever happened to me before regarding medicine. I woke up in the middle of the night with muscle spasms all over my body. It lasted several hours and was both extremely painful and scary.
Now that I’ve told all of what I’ve experienced with gabapentin, I feel a responsibility to add a few disclaimers. I’m only one person, and everyone reacts differently to medications. One of my best friends (albeit without SMA) swears by it and doesn’t have any negative side effects. Also, it’s important to note that your own body can react differently to meds too. I was ill at the beginning of this year. When I was intubated due to becoming unresponsive after going into full arrest and my husband was asleep from exhaustion, they gave me gabapentin with no problems. I’m still on it, but it’s a low dose and I take it at night. So it just depends.
I will say as a warning, it won’t work like an advil. It has to build up in your system; therefore, reciprocally, you can’t just stop taking it all of a sudden either. That would definitely cause you huge issues! I know SMA people who love CBD, but be sure to talk to someone who really knows the product, not just off the Internet or at a store where they sell it in the checkout line as a side item. THC has helped people also, but the same should go for the purchasing of it as well, get it from someone who knows where it comes from.
One more thing, I promise. You will be paying totally out of pocket for CBD and THC, no insurance. CBD for sure can get very pricey the better the quality. It’s like essential oils where you pay more for a purer product. Whatever you decide, good luck and keep us posted as to how it goes. If you want to talk privately sometime about any of it, email me at [email protected]gmail.com.