Tagged: anemia, Iron Infusions, Living with SMA
- This topic has 7 replies, 4 voices, and was last updated 4 days, 12 hours ago by
Alyssa Silva.
-
AuthorPosts
-
-
June 20, 2022 at 11:00 am #29647
Alyssa Silva
KeymasterWell, every weekend in July is basically booked now that I have to go for iron infusions. (Weird that they do it on the weekend, no?) There’s so much my doctors and I are learning about my body this year. One of them being I have extremely low iron levels but not anemia. I tried an iron supplement but it barely made a dent in my levels. So next up are infusions. I’m a little nervous just because there are some risks involved. So I thought I’d ask here for experiences.
Have you ever had iron infusions? How did it go for you?
-
June 20, 2022 at 3:04 pm #29653
Tammy
ParticipantI personally have never gone for any vitamin infusions. But also you could try (which maybe you already know about it), putting raw baby spinach with yogurt and some type of berry to flavor it and put it all in a blender with some milk. Spinach is a great natural iron supplement
-
June 20, 2022 at 8:07 pm #29655
Alyssa Silva
KeymasterThat’s a great idea! Right now I’m just doing tube feeds into my intestines but I will keep that in mind for the future. Many years ago I was on a spinach smoothie kick because spinach tastes like nothing and it was still healthy. I usually did strawberries and bananas. 🙂
-
June 21, 2022 at 9:06 am #29657
DeAnn R
KeymasterMy iron levels have been low, although I’ve never had an infusion. I’m supposed to take a supplement, but am not very consistent. Have you heard of Iron Fish? Apparently you boil it in water to infuse your water with iron. I’ve thought about trying it since I do water flushes with my feeding tube. Not sure if I want to hassle with it or not.
You mentioned risks with the infusion. Can you expand on that?
-
June 23, 2022 at 10:17 am #29665
Alyssa Silva
KeymasterI guess I could go into anaphylactic shock from the infusion but that’s only temporary. It’s in a hospital setting so I guess I’m in the right place if that we’re to happen. Also, I’m curious if it causes constipation. This isn’t necessarily a risk, but with my whacky GI problems I consider it one. 😂 I think because it’s going directly into my blood, it shouldn’t but I’m not entirely sure.
-
-
June 24, 2022 at 2:06 pm #29675
Daniela S.
ParticipantMy iron levels were also recently found to be low. I’ve been taking a liquid iron supplement by mouth for about a week. It’s not too bad, I was expecting a nasty metal taste but you only get a bit of that in aftertaste. Like someone else said, if you can incorporate spinach into your diet that could also help. Beet and carrot juice is also good
-
June 25, 2022 at 4:37 pm #29677
Alyssa Silva
KeymasterI tried beets once and couldn’t stand the taste. Although I’m super picky so that’s probably why I didn’t like it ha. Unfortunately, the supplement wasn’t enough for my levels to improve so we’ll see how these infusions go.
-
-
AuthorPosts
- You must be logged in to reply to this topic.