Like Rachel said, it is an awful lot to post if I post my whole story about my SPC. But for the sake of informing people who don’t know, I will give you what I can.
Much like you DeAnn, I went YEARS doing it the old-fashioned way of sitting on the pot. It was rough at times when a friend had to lay me on the public bathroom floor to get my pants down, or I went all day beginning at 5 AM to come home from work at 5:30 PM to a message from my mom saying she was going to be an hour late due to traffic, or having one beer too many at my college parties and having to race my chair across campus to my dorm to pee. And let’s not even talk about the stern lectures from my urologist as I sat thru the 100th office visit because I had another UTI or kidney stone. It was all just part of being disabled and living my life as close to normal as I could. I didn’t know there was any alternative other than wearing diapers, an option I definitely did not want to entertain.
Then one day, after 52 yrs. of holding my bladder tight for over 12 hours at a time, I heard a rumor in 1 of the Facebook groups I had recently joined. After 52 yrs. of my bladder holding me hostage, I heard about the SPC. Much like you, I asked what it was. What you have written here is a very concise & accurate explanation of how both the SPC & Mitrofanoff procedures work. You have also accurately considered that the Mitrofanoff can have greater risk of complications (due to the need for general anesthesia), greater risk of infection, and greater risk of losing strength during recovery.
I decided at this point that I would talk with my urologist to see what he thought about giving me a SPC. Since it takes a good 2 weeks to get an appt with my doctor, I had plenty of time to do research. I watched YouTube videos on the procedure. I read every medical article I could find. I asked at least a dozen people on Facebook who had one what they thought the pros & cons were of getting it. I have to say 1st, not one person had ANY cons to tell me. That’s pretty amazing when you think about it. As many medical procedures as we have had as a community, not one person could say anything they didn’t like about having a SPC. And in fact, most of them, were ecstatic that they had gotten one. By the time I got to the doctor, I had decided I was going to tell him we were doing it, however I was pleasantly surprised by his complete agreement. He said he thought it would be a great thing to do for me. He wasn’t worried about the actual “surgery” of it because he would use “twilight” anesthesia instead of general. He felt like it would probably help me with my UTIs since even the daily dose of antibiotics I was taking were not working. We scheduled it for the next Monday, and by the next day, I was back at my Tues. night church meetings. No recovery time other than the rest of the afternoon on the day of surgery.
How do I feel about the SPC 5 yrs. later? I am ecstatic about it! I wish I had found out about it when I was younger only because I could have been spared all those yrs. of suffering, all those yrs. of doing harm to my body by not drinking water during the day because I didn’t know when I could go to the bathroom. But I don’t dwell on that aspect very much. Most of the time I’m just super happy that I found out about it and did it when I could. Of all the medical things I’ve been thru (both willingly & not), I can say that getting the SPC was the easiest and least problematic or painful. Even the monthly changes to put in a new catheter is routinely handled by my husband. We started going to the doctor every month to have him change it, but quickly realized that the time we would save in driving, waiting, & having him do it was tremendous. It takes my husband more time to lay out the supplies & wash his hands than it does to change the tube. And you know how you don’t even notice you have earrings in your ears anymore? That’s how it feels in my belly now. I don’t even notice that it’s there!