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Looking Like a Burden
I consider myself a fairly independent person. As such I do what I can myself. With SMA however, there’s just some things I need help with. Rolling over at night being one. Another is going to the bathroom. Even though I don’t live with my Mom, I do stay at her house every other weekend. At first it was because I could find help. Now it’s more so we can do stuff together.
Over the years I’ve trained myself to only turn once a night and to limit bathroom breaks. While at Mom’s last weekend, I called her an extra time because my pj’s were pinching me and I couldn’t get back to sleep. A rare occurrence, not a big deal. My sister stopped over the next day (of course when I was going to the bathroom.) Mom jokingly mentioned she needed more coffee as she got up an extra time because of a wrinkled shirt. Ugh, first it made me sound like a diva when it was so much more than a wrinkled shirt. Second it made me look like a burden. I know Mom was joking and doesn’t feel I’m a burden, but it sure gave that appearance.
My sister has the uncanny ability to stop over just when I’m going to the bathroom. She must think I go 20 times a day when in reality it’s two. I don’t think she knew Mom was joking, so now she probably thinks I get Mom up at all hours for inconsequential stuff. In her eyes it makes me look like a burden.
I think about finding staff to cover those weekends. It isn’t as easy for Mom to care for me anymore. We both would miss that time together though. What are your thoughts on my situation?
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