SMA News Forums Forums SMA News Today Multimedia SMA News Today’s YouTube The Morale Monologue #6 – SMA Not Funded in the UK

  • kevin-schaefer

    Member
    August 21, 2018 at 2:45 pm

    It’s a real shame. While acquiring Spinraza is a very personal decision, there’s no reason that the SMA community shouldn’t have widespread access to it. I really hope N.I.C.E. does reverse its decision. Thanks for breaking everything down in this video.

  • michael-morale

    Member
    August 23, 2018 at 8:35 am

    They not only need this treatment, they DESERVE it. Thanks for your comments Kevin.

  • deann-r

    Member
    August 23, 2018 at 8:41 am

    Thanks for keeping us informed Michael.  My heart breaks for all the families that don’t have access to this treatment.

  • michael-morale

    Member
    August 23, 2018 at 8:59 am

    It’s heartbreaking. They need to hear our voice. Thanks for your comments DeAnn.

  • esther-collington

    Member
    August 23, 2018 at 11:12 am

    That’s the first I’ve heard of that. I live in the UK and it was a glimmer of hope on the horizon! Thanks for thinking of us.

Log in to reply.