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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 1 reply, 1 voice, and was last updated 4 days, 17 hours ago by DeAnn R.

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      • #21943
        Kevin Schaefer

        Hey everyone! Hope you all had a great weekend. For today’s Motivation Monday topic, check out my latest column here.

        Often, we spend a lot of time in disability communities talking about the more frustrating conversations and interactions we have with people. It’s important that we discuss these scenarios, and especially that we educate others about ableism, so that they know to treat us normally.

        At the same time, I think it helps to reflect on the more humorous interactions as well. I wrote about some of mine in this piece, and it was fun. Getting mixed up with Kevan Chandler was especially entertaining. I emailed him about it.

        I’m sure you all have stories too, and I’d love to hear them! Anyone have any favorite funny SMA stories? People with SMA and parents/caregivers are welcome to share.

      • #21958
        DeAnn R

        Oh yes, you know the dog must be guiding us in our chairs. I’ve gotten that one too. As well as being confused with other individuals in wheelchairs. I chalk it up to folks being naive. As they get more exposure to situations they can learn. It sure can be funny though.

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