• Flash Briefings and Podcasts

  Podcast 80: Apitegromab Updates and Recent Columns

  Posted by kevin-schaefer on April 21, 2021 at 7:00 am

  Hey everyone! Hope you’re all having a great week so far.

  Check out the latest podcast episode here. Me, Michael, and DeAnn discussed updates on Apitegromab, forum topics, and some recent columns. I’ve included links below.

  Hope you enjoy listening! Please feel free to share your thoughts.

  Links to news stories and forum topics: 

  -Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds

  -Apitegromab Over 1 Year Bolsters Motor Abilities of Types 2 and 3: TOPAZ Trial

  –Sleep solutions

  –Trying to keep expectations in check 

  ================================

  Links to columns:

  -”Why I Never Had a Spinal Fusion: A Retrospective, 10 Years Later” by Sherry Toh

  -”An SMA Patient and a Pulmonologist Comment on the COVID-19 Vaccine” by Halsey Blocher 

  -”How to Build and Maintain a Network of ‘Masked Advocates’” by Ari Anderson

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  kevin-schaefer replied 2 years, 1 month ago 0 Member · 0 Replies

  • Adults With SMA
  • apitegromab
  • Ari Anderson
  • Halsey Blocher
  • Living with SMA
  • rare disease
  • Scholar Rock
  • Sherry Toh
  • SMA News Today Podcast
  • SMA treatment
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