• Spinal Headaches

    Posted by kevin-schaefer on September 24, 2019 at 11:00 am

    Hey everyone!

    Today, I’m going in for my ninth Spinraza injection. I’ve been extremely fortunate, as all my injections have gone smoothly, and I haven’t dealt with any side effects. I drink plenty of liquids the day before, and I take it easy on injection days.

    However, one of my biggest concerns before I started this process was the possibility of spinal headaches. I know people who have had these, and they sound terrible.

    Has anyone on Spinraza had spinal headaches? How have you dealt with them?

    kevin-schaefer replied 4 years, 6 months ago 5 Members · 5 Replies
  • 5 Replies
  • rachel-markley

    Member
    September 24, 2019 at 11:57 am

    I had the start of one with my last dose. I drank a medium Mt Dew freeze from Taco Bell (recommendation from Biogen FAM) and it went away!

  • ryan-berhar

    Member
    September 24, 2019 at 3:14 pm

    Hope it goes well

  • lupa-f

    Member
    September 24, 2019 at 3:29 pm

    Closest I came to one was maybe for my 3rd or 4th dose when at the hospital they gave me a pillow for my head while I was laying down waiting to be allowed to go home. After a couple of minutes I could feel a headache coming on, but I took the pillow away and it mostly went away too so now I don’t let them give me a pillow.

    I do feel sort of mushy is the best way to describe it for the day of and next day after an injection. Like I can tell if I exert myself too much it’ll start feeling like a headache is coming on, but it’s never been serious enough that I needed to do anything other than stop exerting myself for a minute.

  • deann-r

    Member
    September 25, 2019 at 11:46 am

    It went well? Thankfully I haven’t experienced this. Good excuse to have caffeine on hand though.

  • kevin-schaefer

    Member
    September 25, 2019 at 2:54 pm

    Thanks everyone! Yep it went great. I drink a lot of caffeine, and it seems to do the trick each time.

    Rachel, Lupa, sorry you had to deal with these briefly, but glad they didn’t last!

Log in to reply.