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This topic has 5 replies, 5 voices, and was last updated 9 months, 3 weeks ago by Kevin Schaefer.

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    • #20700
      Kevin Schaefer
      Keymaster

      Hey everyone!

      Today, I’m going in for my ninth Spinraza injection. I’ve been extremely fortunate, as all my injections have gone smoothly, and I haven’t dealt with any side effects. I drink plenty of liquids the day before, and I take it easy on injection days.

      However, one of my biggest concerns before I started this process was the possibility of spinal headaches. I know people who have had these, and they sound terrible.

      Has anyone on Spinraza had spinal headaches? How have you dealt with them?

    • #20709
      Rachel Markley
      Participant

      I had the start of one with my last dose. I drank a medium Mt Dew freeze from Taco Bell (recommendation from Biogen FAM) and it went away!

    • #20712
      Ryan Berhar
      Member

      Hope it goes well

    • #20713
      Lupa F
      Participant

      Closest I came to one was maybe for my 3rd or 4th dose when at the hospital they gave me a pillow for my head while I was laying down waiting to be allowed to go home. After a couple of minutes I could feel a headache coming on, but I took the pillow away and it mostly went away too so now I don’t let them give me a pillow.

      I do feel sort of mushy is the best way to describe it for the day of and next day after an injection. Like I can tell if I exert myself too much it’ll start feeling like a headache is coming on, but it’s never been serious enough that I needed to do anything other than stop exerting myself for a minute.

    • #20733
      DeAnn R
      Keymaster

      It went well? Thankfully I haven’t experienced this. Good excuse to have caffeine on hand though.

    • #20736
      Kevin Schaefer
      Keymaster

      Thanks everyone! Yep it went great. I drink a lot of caffeine, and it seems to do the trick each time.

      Rachel, Lupa, sorry you had to deal with these briefly, but glad they didn’t last!

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