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  • Spinraza (nusinersen)

    Spinaversary – Dose 9

    Posted by deann-r on July 19, 2019 at 4:13 pm

    Next week will be dose 9 for me! I’m considering it my Spinaversary because it’s the closest dose to the 2 year mark of starting Spinraza. Wow! I can hardly believe it. Even though the results aren’t dramatic I really can’t fathom where I’d be today having not been on it. This time I’m having same day labs, so that makes me nervous. Fingers crossed they’ll find a vein without too much difficulty. I’m also trying a new transportation company. Eek! Wish me luck!

    ryan-berhar replied 5 years, 4 months ago 3 Members · 2 Replies
  • 2 Replies

  • kevin-schaefer

    Member
    July 19, 2019 at 4:41 pm

    Good luck! Hope it’s less stressful for you than the last one!

  • ryan-berhar

    Member
    July 19, 2019 at 9:10 pm

    Best of luck

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