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    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 2 replies, has 3 voices, and was last updated by  Ryan Berhar 1 month ago.

    • Author
    • #19907
       DeAnn R 

      Next week will be dose 9 for me! I’m considering it my Spinaversary because it’s the closest dose to the 2 year mark of starting Spinraza. Wow! I can hardly believe it. Even though the results aren’t dramatic I really can’t fathom where I’d be today having not been on it. This time I’m having same day labs, so that makes me nervous. Fingers crossed they’ll find a vein without too much difficulty. I’m also trying a new transportation company. Eek! Wish me luck!

    • #19908
       Kevin Schaefer 

      Good luck! Hope it’s less stressful for you than the last one!

    • #19910
       Ryan Berhar 

      Best of luck

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