Switching to Evrysdi (risdiplam) from Spinraza
Since Evrysdi (risdiplam) is FDA approved, many are considering the switch from Spinraza. Myself included. However, Spinraza works well for me.
Even though the process is a pain, I don’t have ill effects or some of the other common issues. Therefore I’ve decided to bide my time and take in all of the considerations before jumping ship. My regular neurology appointment should be in December, so I think I’ll discuss it then.
As a parent I can’t imagine what a difficult decision this would be. There are so many factors to consider. Obviously a spinal injection isn’t optimal. If Spinraza is working well though switching might not appeal to you. Then there’s the side effects to think about. I haven’t dived into researching yet, but it’s always something to look into.
Have you made the decision? What factors influenced your choice?