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Time Is Motor Neurons

A father’s perspective: Our journey to finding a treatment

When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our other 3 children, my wife, Annie, and I thought we had the “chillest” baby in the world. We joked that she was saving up all her energy for when she entered this world kicking and screaming. Quinn was born in August 2018, and she was the most beautiful little girl. Over the first few months, nothing seemed out of the ordinary. In fact, she appeared healthy and had strong upper body strength. But by the time Quinn’s 9-month check-up came around in June, her physical condition started to change.

This topic has 1 reply, 1 voice, and was last updated 2 months, 3 weeks ago by Alyssa Silva.

  • Author
    • #22533
      Kevin Schaefer

      Hey everyone! Hope you’re all having a great week so far. Check out the latest podcast here.

      In episode 53, I interview our very own Alyssa Silva. Alyssa is from Cumberland, Rhode Island, and she is a columnist and forums moderator here at SMA News Today. She’s also the founder of the nonprofit organization Working on Walking. Throughout this conversation, she talks about growing up with SMA Type 1, her college experiences, writing, and more.


      This was a fun one to record, and I hope you all enjoy! Do you have any takeaways from this episode? Can you relate to Alyssa’s story?

    • #22570
      Alyssa Silva

      ”Can you relate to Alyssa’s story?”

      You mean not everyone gets sprayed by a skunk their first 2 days of middle school??? Thanks again for the opportunity! I had a blast. 🙂

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