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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 1 reply, 1 voice, and was last updated 5 months, 1 week ago by Alyssa Silva.

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    • #22533
      Kevin Schaefer
      Keymaster

      Hey everyone! Hope you’re all having a great week so far. Check out the latest podcast here.

      In episode 53, I interview our very own Alyssa Silva. Alyssa is from Cumberland, Rhode Island, and she is a columnist and forums moderator here at SMA News Today. She’s also the founder of the nonprofit organization Working on Walking. Throughout this conversation, she talks about growing up with SMA Type 1, her college experiences, writing, and more.

       

      This was a fun one to record, and I hope you all enjoy! Do you have any takeaways from this episode? Can you relate to Alyssa’s story?

    • #22570
      Alyssa Silva
      Keymaster

      ”Can you relate to Alyssa’s story?”

      You mean not everyone gets sprayed by a skunk their first 2 days of middle school??? Thanks again for the opportunity! I had a blast. 🙂

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