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The importance of newborn screening for SMA

Rory and Carolyn met in seminary, fell in love, and got married. They decided to hold off on starting their own family while they settled into their first jobs in North Dakota. After a few years, they moved to Minnesota, where Rory accepted a job as a minister, and Carolyn enrolled in a hospital chaplain residency program. At the time, they did not know how important the decision to move would be for their future family. When they moved, neither North Dakota nor Minnesota had SMA on their newborn screening panel. It wasn’t until March 2018 that Minnesota adopted and implemented newborn screening for SMA, and then several months later, in 2018, Rory and Carolyn’s only son Edan was born.

This topic has 1 reply, 1 voice, and was last updated 7 months, 3 weeks ago by Alyssa Silva.

  • Author
    • #22533
      Kevin Schaefer

      Hey everyone! Hope you’re all having a great week so far. Check out the latest podcast here.

      In episode 53, I interview our very own Alyssa Silva. Alyssa is from Cumberland, Rhode Island, and she is a columnist and forums moderator here at SMA News Today. She’s also the founder of the nonprofit organization Working on Walking. Throughout this conversation, she talks about growing up with SMA Type 1, her college experiences, writing, and more.


      This was a fun one to record, and I hope you all enjoy! Do you have any takeaways from this episode? Can you relate to Alyssa’s story?

    • #22570
      Alyssa Silva

      ”Can you relate to Alyssa’s story?”

      You mean not everyone gets sprayed by a skunk their first 2 days of middle school??? Thanks again for the opportunity! I had a blast. 🙂

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