Vulnerability In Life With SMA

[Ryan Berhar]

Hey everyone, here’s Kala’s newest column.

My Vulnerability Isn’t the Result of a Spiritual Awakening

I think she does a great job of explaining some of the nuance of life with SMA. Physical vulnerability is out of necessity. It’s a way of life. That doesn’t necessarily mean that we’re also vulnerable in other ways, however. Can you relate? In what ways does SMA affect your vulnerability?

• This topic was modified 1 year, 10 months ago by Ryan Berhar.
• This topic was modified 1 year, 10 months ago by Marta Ribeiro.

[Halsey Blocher]

I can absolutely relate to physical vulnerability. I am dependent on others for showering, dressing, and using the toilet. And since I have nursing care, I have had to train a lot of new people in these aspects of my care. At this point, I’m pretty used to it, but it’s really not fun, especially since I’m a pretty modest person.

[DeAnn R]

Forced vulnerability I guess you could say. I do think it’s comical sometimes when I think about how many people have seen me naked. Honestly I don’t even remember some of them. It’s just something we have to deal with though. When people compliment how vulnerable or open we are I think it’s more a compliment on how we handle the situation. I don’t think they can imagine doing what we do, but of course if it was them they’d deal with it too.

[Adnan Hafizovic]

When you mentioned this DeAnn  I remember it and how much I was ashamed when somebody sees me naked especially when I was younger. But now I do not care anyway

[Author]

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