• Sponsored Post

    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 3 replies, 4 voices, and was last updated 6 months ago by Adnan Hafizovic.

    • Author
      Posts
      • #19233
        Ryan Berhar
        Participant

        Hey everyone, here’s Kala’s newest column.

        My Vulnerability Isn’t the Result of a Spiritual Awakening

        I think she does a great job of explaining some of the nuance of life with SMA. Physical vulnerability is out of necessity. It’s a way of life. That doesn’t necessarily mean that we’re also vulnerable in other ways, however. Can you relate? In what ways does SMA affect your vulnerability?

      • #19237
        Halsey Blocher
        Participant

        I can absolutely relate to physical vulnerability. I am dependent on others for showering, dressing, and using the toilet. And since I have nursing care, I have had to train a lot of new people in these aspects of my care. At this point, I’m pretty used to it, but it’s really not fun, especially since I’m a pretty modest person.

      • #19238
        DeAnn R
        Keymaster

        Forced vulnerability I guess you could say. I do think it’s comical sometimes when I think about how many people have seen me naked. Honestly I don’t even remember some of them. It’s just something we have to deal with though. When people compliment how vulnerable or open we are I think it’s more a compliment on how we handle the situation. I don’t think they can imagine doing what we do, but of course if it was them they’d deal with it too.

      • #19241
        Adnan Hafizovic
        Participant

        When you mentioned this DeAnn  I remember it and how much I was ashamed when somebody sees me naked especially when I was younger. But now I do not care anyway

    Viewing 3 reply threads
    • You must be logged in to reply to this topic.

    ©2019 KLEO Template a premium and multipurpose theme from Seventh Queen

    CONTACT US

    We're not around right now. But you can send us an email and we'll get back to you, asap.

    Sending
    or

    Log in with your credentials

    or    

    Forgot your details?

    or

    Create Account

    Copyright © 2017-2019 All rights reserved.