When Resilience Is the Norm
Good news! We were able to get the blood drawn. It took several pokes—the nurses kept shaking their heads like they couldn’t believe how terrible my veins are—and there was some pretty triumphant cheering when they got what they needed, but we got it done! I’m just waiting for the labs to get sent to my dermatologist, which, as I’m sure you all know, is a feat in and of itself. Fingers crossed it all works out!
The nurses told me several times how great I was doing, which struck me as odd. I’m not the biggest fan of bloodwork, but I’ve gotten used to it over the years. It’s not really something that crosses my mind anymore; it’s just an aspect of my daily life, annoying and ridiculous but ultimately the norm. It’s all part of SMA, which is to say it’s all part of my daily routine. I actually wrote a column about it, which you can read here.
Do you ever have moments where you realize just how abnormal your life really is?