• Unanswered Discussions
•  kevin-schaefer

  Building your SMA healthcare team

  replied 1 day, 1 hour ago 1 Member · 0 Replies

  Diagnosis​ Info ​and​ ​General​ ​Questions
•  sherry-toh

  Self-care check-in! May ‘25

  replied 1 month, 4 weeks ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  sherry-toh

  If you could produce a film about SMA, how would you do it?

   sherry-toh replied 1 month, 4 weeks ago 1 Member · 0 Replies

  Disability in Media
•  alyssa-silva

  How do you define success on your own terms?

   alyssa-silva replied 2 months, 2 weeks ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  What helps you stay motivated on difficult days?

  replied 2 months, 3 weeks ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Have you used care.com to hire PCAs?

  replied 4 months, 3 weeks ago 1 Member · 0 Replies

  Parents​ ​and​ ​Caregivers​
•  alyssa-silva

  Does snow or other wintery conditions affect you where you live?

  replied 4 months, 3 weeks ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  deann-r

  Can you believe it’s 2025?

   deann-r replied 6 months, 1 week ago 1 Member · 0 Replies

  Raising Awareness of SMA
•  alyssa-silva

  Do you have tips for staying organized or managing stress?

   alyssa-silva replied 6 months, 3 weeks ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  What are some important discussions you always have with a new doctor?

  replied 7 months, 3 weeks ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  What is on your medical calendar for November?

   alyssa-silva replied 8 months, 1 week ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  deann-r

  Do you ask visitors for favors?

   deann-r replied 8 months, 3 weeks ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  deann-r

  Will you take advantage of the Travel Support Package?

   deann-r replied 8 months, 4 weeks ago 1 Member · 0 Replies

  Assistive Technology
•  alyssa-silva

  Where do you buy your shoes, and in what styles?

  replied 9 months, 3 weeks ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Have you ever gotten dental implants before?

   alyssa-silva replied 9 months, 3 weeks ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  What strategies helped you succeed academically while living with SMA?

   alyssa-silva replied 10 months ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  How do you balance independence with the need for assistance from a caregiver?

   alyssa-silva replied 10 months, 1 week ago 1 Member · 0 Replies

  Parents​ ​and​ ​Caregivers​
•  alyssa-silva

  Did you have spinal surgery?

  replied 11 months, 3 weeks ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  deann-r

  Do you feel rushed as someone with SMA?

   deann-r replied 11 months, 2 weeks ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Ever experience post-hospitalization trauma?

  replied 11 months, 3 weeks ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Have you seen Delta Airlines’ new wheelchair seat prototype?

   alyssa-silva replied 1 year ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  What would it take to redesign society to fit everyone’s needs better?

   alyssa-silva replied 1 year, 1 month ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  deann-r

  How do you stay fresh?

   deann-r replied 1 year, 2 months ago 1 Member · 0 Replies

  Adults ​With​ ​SMA
•  alyssa-silva

  Is there anything you can do to improve swallowing abilities?

  replied 1 year, 3 months ago 1 Member · 0 Replies

  Adults ​With​ ​SMA