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Attending a Live-Streamed Funeral
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in: Coronavirus (COVID-19) and SMA
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- 11 hours, 29 minutes ago
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A new school year
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in: SMA Parents and Caregivers
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- 1
- 7 hours, 29 minutes ago
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Columnist Writes About ‘Disability Visibility’
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in: Disability in Media
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- 1
- 2 days, 7 hours ago
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Differences Between Evrysdi and Spinraza
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in: The SMA News Today YouTube Channel
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- 1
- 2 days, 11 hours ago
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Dealing with TMJ
Started by:
in: Adults With SMA
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- 1
- 3 days, 9 hours ago
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Service Dog Saga Part 2: Meeting Horton
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in: Adults With SMA
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- 1
- 6 days, 23 hours ago
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Podcast 66: Chat on Evrysdi, SRK-015, and Recent Columns
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- 1
- 1 week ago
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Columnist Writes About Dreams
Started by:
in: Adults With SMA
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- 1
- 1 week, 2 days ago
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Columnist Writes About The Message Behind Her Celery Juice
Started by:
in: Adults With SMA
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- 1
- 1 week, 3 days ago
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On Being a Warrior with SMA
Started by:
in: Adults With SMA
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- 1
- 2 weeks ago
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Need Travel Advice
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in: Adults With SMA
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- 1
- 2 weeks, 1 day ago
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FAQs Regarding Evrysdi (Risdiplam)
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- 0
- 1
- 2 weeks, 2 days ago
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Bad Brain Days?
Started by:
in: Adults With SMA
- 0
- 1
- 2 weeks, 6 days ago
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Sending Your Child to School
Started by:
in: SMA Parents and Caregivers
- 0
- 1
- 3 weeks ago
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How’s it Going?
Started by:
in: Adults With SMA
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- 1
- 3 weeks, 2 days ago
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Attending a Live-Streamed Funeral
Sponsored Post
The importance of newborn screening for SMA
Rory and Carolyn met in seminary, fell in love, and got married. They decided to hold off on starting their own family while they settled into their first jobs in North Dakota. After a few years, they moved to Minnesota, where Rory accepted a job as a minister, and Carolyn enrolled in a hospital chaplain residency program. At the time, they did not know how important the decision to move would be for their future family. When they moved, neither North Dakota nor Minnesota had SMA on their newborn screening panel. It wasn’t until March 2018 that Minnesota adopted and implemented newborn screening for SMA, and then several months later, in 2018, Rory and Carolyn’s only son Edan was born.
FDA Approves ZOLGENSMA for SMA! Talk about it now — click below:
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