For My Best Friend, My Brother
On April 10, social media exploded with pictures and posts pinned with #NationalSiblingsDay. Using it, people shared sweet or comical words about their siblings and what they mean to them. I,…
Life, One Cup at a Time
— Alyssa Silva
Alyssa Silva is a writer based out of Providence, Rhode Island. She was diagnosed with SMA type 1 in 1991 when she was just 5 months old. Aside from writing, Alyssa is the chief creative officer for an intimates brand and runs a small business selling her artwork. In her free time, you can find her canceling plans to hang out with her golden retrievers, watching reruns of “The Office,” and convincing others why Taylor Swift is the greatest of all time.
Featured Post
What I hope you’ll understand this SMA Awareness Month
“Don’t worry, we all got the Alyssa lesson before we started working here,” the new fellow joked after having completed his second nasojejunal (NJ) feeding tube exchange on me. Though everyone in the room…
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3 Simple Techniques that Nurture Your Emotional Well-being
While taking care of ourselves physically is always the number one priority, it is also mindful to nurture our emotional well-being in the same regard. Living with SMA means enduring added obstacles…
What a New Season Means to Me
If you’re anything like me, then you are just as excited about the turn of the season that happened a few days ago. It is officially spring, here in the Northern Hemisphere…
SMA: A World of Firsts
“Well, Alyssa, I’ve certainly experienced many firsts thanks to you,” my mother said as a nurse untied the surgical gown from her back. I’m sure we all have our fair share of…
Let the Light Shine In: The Best Advice a Doctor Could Give Me
Some of my biggest lessons have come from my toughest messes. To me, that’s the best way to grow. It’s the best way to move forward and come to terms with the…
Childhood Essays and Wishes that Become Reality
For the Silva family, cleaning out the basement in recent weeks has become a trip down memory lane. Pictures strewn in boxes tell stories of my childhood and how my parents did…
How My Occupational Therapist Changed My Life
As a child, during the summer months, the neighborhood kids and I spent our days on the corner of my yard selling lemonade to passersby. My mother would help us prepare…
My Diagnosis Day
My parents say it was another beautiful, sunny Saturday in April. They had two perfect children, a boy and a girl, like they had always wanted, and they couldn’t wait to finally…
My First Mistake of 2018
Coming to you, live from my couch and in yesterday’s clothes, this column is all about how I made a mistake. Truth be told, I’m not happy about admitting it. But with…
The Christmas Tree in the Bay Window
Growing up, there was a big bay window in the house where I lived. It overlooked the front yard and gave a great view of the surrounding houses and outside world. The…
Merry Flu Season
This morning, I woke up to a most unusual greeting from my mother. “Good morning. I want you to stay out of Massachusetts,” she said while removing the BiPAP from my nose.
Practicing Simplicity and Finding Peace Amid a Chaotic Life
As Ella Fitzgerald and Louis Armstrong softly sing Christmas classics in the background, I ask my mother to set me up on my iPhone so I can gear up to write another…
