SMA Stories: Meet Stella Bartlett

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by Wendy Henderson |

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Stella Bartlett is a little girl from Toronto, who was diagnosed with type 2 spinal muscular atrophy when she was just a baby. The gutsy 7-year-old is grabbing life by the horns, attending school and listening to her favorite music by artists like Taylor Swift, Katie Perry and One Direction.

MORE: Seven support areas that can help patients with SMA.

Stella’s parents, Myles and Sarah, have documented Stella’s journey with SMA in a blog, This is Stella. As well as beautiful photographs covering the family’s happy occasions, the blog also shows the harsh reality of SMA, including many of Stella’s hospital stays.

The family is very active in the SMA community, regularly hosting events for SMA Canada and raising money to buy Stella a motorized wheelchair and to get her on the new groundbreaking SMA drug Spinraza.

MORE: Canadian families still waiting for Spinraza approval.

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