Embracing Disability Pride Month
July is recognized as Disability Pride Month, as it coincides with the anniversary of the signing of the…
Articles by Kevin Schaefer
The Beauty of Interacting with Strangers
“I want to know, can you show me/ I want to know about the strangers like me.”…
Saying Farewell to My Beloved Canine Assistant
What follows is possibly the most difficult column I’ve ever written. Since 2020 has a recurring…
The Annual SMA Conference Was a Little Different This Year
I was supposed to be in Disney World right now. I was planning on a week in the…
Lean on Me — Literally
“I can’t carry it for you, but I can carry you!” Samwise Gamgee shouts in…
Thoughts About Risdiplam: Pros and Cons of Starting a New Treatment
As I lay sideways on the operating table for my most recent Spinraza injection, my neurologist asked me…
That Pesky Pre-Spinraza Injection Fatigue
When I began my journey with Spinraza (nusinersen) in November 2017, I had…
Managing SMA Is Like an Ongoing Chess Match
Puzzles are all the rage these days. Since the onset of the COVID-19 pandemic, countless friends on my…
SMA Humor Writes Itself
The comedian Brad Williams has a great one-liner about writing jokes. Williams’ observational…
My Marvel-inspired Workout Routine for COVID-19 Lockdown
As I entered week six of COVID-19 lockdown, I knew I had a choice to make. I could…